Tuesday, July 28, 2009

Being -Free: A Guide to Coping with Allergies

Because of E's numerous food allergies (let's review: dairy, egg, nuts, mildly allergic to wheat, used to be allergic to fish too), I've ended up being a resource to my friends whose kids subsequently also develop food allergies or sensitivities. I'm bummed to hear other people tell me their child can't have milk / soy / gluten /nuts /name your food here, and I wish in a way that I was the only one dealing with this because it's a crummy situation, let's just be honest about it.

That being said, when I thought about how things have gone with E's diet, it's not the colossal pain and source of emotional angst that it used to be. Somehow, we've adjusted to it pretty well. So I thought it might be useful for those of you who are trying to do the -free diet to read what's worked well for us.

Eating Out Is Bad
Okay, if not bad, at least a pain. Eating out is never easy because waiters don't always know if the food you order contains the offending food. Heck, even the cooks don't always know because processed foods can contain trace amounts of stuff you just wouldn't expect in that food. And it's not just going to restaurants, it's going to people's houses, amusement parks, and birthday parties, too. E always gets a big bowl of fruit salad and a small bag of gummi bears when he goes to a birthday party; he never partakes of cake, and that's just how it's always been. So if you want to eat out, make sure you're bringing something along for your child that you KNOW is safe and that he'll enjoy.

Substitute Foods Are Great

There are a lot of options out there these days: soy milk for regular milk, non-dairy margarines for butter, rice-based pasta instead of wheat. You can swap a lot of these substitute foods without really a noticeable difference in taste or texture. A few items that have passed our discriminating palettes (that being mine, not E's since he has never had the original to compare to):

  • Soy Yogurt - Whole Soy is my favorite brand; it's thick and creamy and full of fruit flavor. I especially like the lemon and mango/apricot. Silk can be good, too. Its texture is like Yoplait, but I find it cloyingly sweet (E loves their blueberry soy yogurt).
  • Rice-Potato-Soy Pasta - I forget the name brand, but check out your closest Whole Foods for a selection of gluten-free pastas. I've found that ones that have a combination of grains has better texture than the ones that are all one grain (quinoa, rice, etc), which tend to be mushy unless cooked perfectly. Also check out soba, made from buckwheat (which is gluten-free and wheat-free despite the name) - but beware, some soba has wheat in it, so look for the kind that's 100% buckwheat.
  • Double Rainbow Blueberry Soy Ice Cream - It has such great blueberry flavor that you can't really taste the soy flavor too much.
  • Sorbet - for those of you who can't deal with the soyness of soy ice cream, enjoy some sorbet or fruit juice popsicles.

Not All Substitute Foods Are Great
The worst offenders:

  • Gluten-free bread - any brand, I guarantee you it will be an affront to all that is beautiful and delicious about bread. It is the gluten that imparts bread with that great chewy, light, delightfully pillow-soft texture. Forget about bread and carbo-load on something else (potatoes, rice, corn, there's lots of options).
  • Gluten-free, dairy-free, and egg-free cake/cookies - I hate to break it to you, but you're generally going to pass up the bakery section of your grocery store. Leaving 1 one of those 3 things can still result in a tasty treat, even 2 out of 3 can be a winner, but not having any of those things in your baked good - you'll just have to learn to get over it. What you can get is usually not worth the calories anyway. As an alternative, try gluten-free, vegan fruit pie.
  • Fake cheese - pretty self-explanatory.

Forget About Imposters
After all that talk about substitute foods, which have their place, we find that it's just much tastier not to pretend. Why eat fake yogurt for breakfast when you can have a real hash brown? Sometimes when you go on a -free diet, you spend so much time worrying about what you can't eat that you forget about the great things you still can eat. Just a reminder for you:

Breakfast foods:

  • Hash browns
  • Rice crispies cereal (great with some freeze-dried berries and soy milk)
  • Corn flakes
  • Sausage (check ingredients to make sure there's no dairy)
  • Bacon
  • Fruit

Snacks:

  • Potato, corn, or tortilla chips
  • Popcorn
  • Fruit

Generally speaking, Asian meals will have the most options for gluten-, dairy-, and egg-free dishes, especially Vietnamese cuisine, which is largely rice-based.

Leading By Example
The most important aspect of a successful -free diet is your outlook. The way you react to your child's diet will become your child's reaction. Act as if your child is being deprived and he will feel like he's being deprived. Sometimes it's the hardest thing for a parent to act like being allergic to something is like having straight hair or brown eyes - it just is part of who your child is. For me, it was so hard not to feel like I've lost out on something I always imagined myself doing with my kids: baking cookies together or making pancakes together on a Sunday morning.

At the same time, it's imperative to help your kids to understand that they do have an allergy. As much as I'd like to hope that I'll always be there to keep E from the things he can't eat, it's not realistic. He needs to be able to tell his teachers, his friends, or his friends' parents what will make him sick. E now is able to tell people, "I can't have eggs", "no cows milk for me", "I can't have cake, thank you". And he doesn't feel bad about it (usually his follow-up statement is, "can I have some gummi bears instead?").

The trick is to strike the balance between being clear what foods he is allergic to and not making a big deal of it. A few lessons we've learned along the way:

  • Try to have the whole family follow the same diet, at least when you are with your child. Don't groan, if your kid can't eat pizza, is it fair for you to munch away on a slice in front of him? Meet your pizza needs when you're at work, and enjoy family dinners that you can enjoy as a family. You will probably actually start eating healthier for it.
  • Don't freak out if your child is putting a foreign food near his mouth (parents whose kids get anaphylactic reactions get some slack on this one). You don't want your child to fear food. Instill in your kids the habit of not eating new foods when they're not with you, and teach them why.
  • Carry an epi-pen and Benadryl (children's oral suspension) with you when you go out to eat, just in case.
  • Read all food labels and try not to keep dangerous foods in the house.
  • Try to discourage your kids from being picky eaters (an uphill battle for some parents, I know). But the thing is, if your child can’t take in entire groups of food (dairy, gluten products, soy, etc), then it’s more difficult to ensure they have a balanced diet. Teach your kids to embrace the foods they can eat so that they get variety and balance in their diet. The best way to do this is not to be picky yourself – suck it up and be an adult about eating your green vegetables or fish or whatever you dislike eating.

I’m sure there are plenty of other tips that I’ve missed or haven’t picked up on yet. So if you have a child who has a food sensitivity and/or allergy, please share your strategies on how you cope with his/her dietary restrictions.

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